El primero de su tipo en el mundo
No hay otro programa que aborde brindar una mejor calidad de vida para las personas con ELA (pALS) y sus cuidadores (cALS).
Our aim is to provide an affordable wellness center for short and longer term care for pALS and their families. Whether for a 2–4-week or month visit, or for a longer stay.
We need your donation to make this a reality and provide hope for those who are in this desperate situation.
DID YOU KNOW?
It is estimated that there are between 450,000 and 600,000 people living with ALS in the world today, but it’s likely that this number is much higher due to the fact that it is a difficult and time-consuming diagnosis and often patients die before they receive a diagnosis.
In the U.S., the annual cost of caring for an ALS patient can exceed $200,000 a year, above what the average insurance pays.
ALS does not discriminate based on gender, age or social status. To this date, the exact causes of the disease are not known and the majority of people have no idea that the disease exists or that anyone can come down with it.
The faces of ALS
The incidence of ALS is increasing, not only because of diagnostic techniques and increased awareness, but because our world is becoming progressively more toxic. Our ecosystem, food and water supplies and an ever more toxic social/emotional environment are contributing factors. ALS is not an “old man’s” disease, it can affect anyone at any age!
Deon’s wife Bernice has lovingly cared for and kept Deon involved in all family events, no matter what effort was required for over a decade! Few families are able to make this kind of sacrifice in order to provide the level of care needed to ensure that someone like Deon can remain in line for a future cure or effective ALS treatment.
Bill is an avid outdoor enthusiast. Prior to the limitations of ALS he spent his time boating, hunting, fishing, hiking and living an active life. As his ALS symptoms progressed he is unable to enjoy those activities but remains focused on what he can do to heal and reclaim his freedom that comes with having energy and mobility.
John is a husband, father, and grandfather who loves spending time with his family and playing sports. Up until the time he started to have muscle weakness he was very active playing tennis, golf and paddle tennis. Due to his love of sports he enjoyed coaching youth sports and volunteering on various community boards. In the past decade he has not allowed ALS to stop him from participating in important family events.
William Richard Münzer
As the founders of the Foundation for Holistic Well-Being, we all have different reasons as to how and why we became sensitive to the suffering of ALS patients and their loved ones. It’s difficult for us to see the impact of the disease on those afflicted and their families without acting. This is why we came up with the concept for this project and partnered with Healing ALS to find a way to bring a better quality of life to the entire ALS impacted family.
In doing so, we hope to alleviate some of the suffering.
We are a passionate group of people trying to make the world a better place for people living with ALS and their families.